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Archive for October, 2010

Communication

I do think I’m going to put this blog on hold for awhile.  I re-read my post from yesterday and it sounded pretty bleak. This is disease is so hard to understand and I’m having a terrible time trying to put into words.

I’m NOT going to cave in to this disease.  I’m not throwing in the towel.  I AM fighting this disease.  I’ve just spent the last month trying to figure out what direction to take.  I went to Cohoon Kineseology this morning and feel pleased with the aproach that Dr. Cohoon is taking.  I went and saw Dr. Fan, my pain management doctor, this afternoon and he said that since we’ve exhausted the simpler approaches, we’ll go to the next level.  I’ve got a sympathetic nerve block scheduled for Monday.  And I’ll have follow up blocks after that.  So this is my next step.  This is my next punch at RSD.

Just so that everything is clear…my kids are being fed and taken care of.  I have to run everything from my command post, other wise known as my bed, but I’m still in charge!  lol  Mike has been awesome at buying groceries and cleaning house, and we are fine.  I don’t fix meals like I used to, and I don’t bake anymore, but the necessities are being taken care of.  I’m still holding on to the hope that I’ll have a better quality of life soon.

Until then, I’ll say good bye….for now. 😀

You can always still stay in touch through Facebook!  I’m on there all.the.time! LOL

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I’m sorry

Dear faithful followers – I’m really sorry it’s been a month since my last post.  The last month has been just been a blur of trying to figure out this new disease.  I’ve had lots of really bad days. I’ve been floundering…in all areas of my life.  It’s been a struggle with my kids, with my medications, with constant terrible pain.  And I basically didn’t want to bore you or frustrate you with my constant babble of how I’m dealing with my pain every single day.  It really is the same thing every day.

  • Wake up – take a pain pill (and all my other meds)
  • Have some breakfast with Clark
  • Get back in my bed with my favorite pillow for my foot and heating pad
  • Fall asleep while Clark is watching cartoons
  • Wake up and fix some lunch for me and Clark
  • Take another pain pill
  • Watch Grey’s Anatomy or fall asleep again or try to do some kind of hand work (like crotcheting or cross stitching)
  • Kids come home and start to worry about dinner (b/c I can’t cook anymore)
  • Fix them macaroni and cheese or breakfast food, again
  • Take another pain pill
  • Have kids get ready for bed
  • Take my night time meds

This is my schedule…every single day.

I just don’t feel like I have much to share anymore.  Before all this happened, I had my baking to inspire me and to share with you, but I can’t do that anymore and I just don’t know what to share with you anymore.

So I’m not saying good bye

…because I don’t want this to be the end.

But this blog will definitely, actually already is, different, and I’m struggling with it.  I love having this as an outlet, but, well, I don’t know.  I’m a little blank right now.

I’m praying for some inspiration, but my entire day is wrapped around the pain.


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